uclh.nhs.uk Anmeldelser 18

I had an extremely disappointing experience with University College London Hospitals NHS Foundation Trust, particularly within the Neurology services at National Hospital for Neurology and Neurosurgery ie secretary, PALS, Complaints, Assistant General Manager, Deputy Chief Executive and SERVICE MANAGER QUEEN SQUARE DIVISION- re Queen Square
Over a prolonged period, there were repeated failures in communication across several departments, including unanswered emails, unreturned calls, and poor complaints handling. Despite escalating concerns through PALS, management, and senior executives, many issues remained unresolved for over a year and complaint responses failed to address key points raised.
The experience demonstrated serious administrative and communication failings which caused unnecessary stress and frustration. Patients should not have to repeatedly chase responses or escalate matters simply to receive basic communication and accountability.
Overall, a very poor experience regarding administration, responsiveness, and complaint handling re all of the above.
For fairness, NMCC staff were professional, responsive, and helpful throughout, showing that good patient communication is achievable within the Trust. This can also be said for the excellent service received from OT/Physio. Very generous rating.

Westmoreland Street.

Thankyou thankyou thankyou. I wish I could have stayed longer in your great comfort and care. Thankyou

They keep rescheduling my son's appointments a few hours before we have to go without giving a proper explanation on why they are doing so. His symptoms are urgent and progressive. This is unreal.

OK so i have read the reviews an and obviously everyones experience is so different. All i can say after speaking many times to Mark on the bookings in Andrology is that he is a wonderful caring human being and will always communicate and call you back. Prof Ralphs team in particular
Kemmy was fantastic putting my son at ease for an overnight stay . So so far so good thanks to Mark and Kemmy who truly care.

Fake promises
My wife was diagnosed with breast cancer in 2005. The family were informed that it was at an early stage, and when treated with surgery, she would go into remission.

I, her husband, was rather sceptical of the claim as I had read that no assurance was fullproof. The surgeon repeatedly assured me that she was going to be fine. I gave in!

She underwent some surgeries and chemotherapy thereafter. Then 10 years later, she was asked to come back to the hospital for some routine tests. It was then diagnosed that the cancer cells had entered the lymph nodes.

The original Surgeon had passed away by then, sadly. Further test were done. A new replacement doctor once again promised me that she would go into remission once his team had carried out the planned solution.

That promise was baseless. My wife went back to further surgeries and chemotherapy over the next ten years. Nothing worked to return her to health. She passed away in early 2026.

Warning: I believe it that there is no cure for cancer. And, I further believe that there will never be one, dedpite the tons of money being poured into research black holes.

From my traumatic experience of living with my most beloved wife for years with pain, do not believe in cure. Cure is fake.

Believe in prevention by taking care of your body and health, by avoiding the consumption of meat diet, alcohol and smoking.

Took UCH five years to listen to my reporting an open bite causing airway restriction. They dont do MultiDisciplinary Team approach, tho drs say this is needed. Now they say i need double jaw surgery but i may be too old. No joined up thinking. Devastating to lose my job due to this condition.

My friend was in this hospital for two weeks they diagnosed her with a factor
Wrist which she did not have and with diabetes which she also doesn’t have left her wanting help to toilet nurse told her she would have to wait until she finished her obbs would not recommend this hospital

I am so moved and grateful for the outstanding care I have received from the neurosurgery staff and especially the MSK consultant I saw yesterday Dr. Matteo Bernardotto. As a whole they have beyond no exaggeration saved my Christmas. The clinic was running an hour late due to a fire alarm being set off by of all things burnt toast. Despite this Matteo went above and beyond to listen and did an injection. in addition to what I had performed 10 days ago that FINALLY has left me pain free after years of excruciating pain. Though surgery is probably inevitable to solve my disc issues indefinitely ; I cannot express my gratitude enough for the gift of a pain free Christmas . This hospital is a national treasure and I feel so blessed to receive such world class care by the NHS. Huge thanks to all the staff working tirelessly there for doing such extraordinary work despite all the challenges. The lovely receptionist even loaned me his portable phone charger which was so gracious. If you are ever blessed enough to be referred to UCL thank your lucky stats as they truly care and the support and care I’ve received far surpasses expectations of what I expected from an overburdened underfunded NHS that for most is an absolute lifeline where private care is financially beyond reach. It’s not until we are faced with a serious health issue that one can appreciate treatment that is thoughtful empathetic and effective. God save the NHS. 🙏🏻

After waiting over 1 year for an appointment, I finally get an appointment for today and when I arrive they tell me it's been cancelled, no-one informed me of any cancellation and it's not acceptable, I travelled far to get there and I wasn't happy at all.

My long-term experience with the UCLH Autonomic Unit has been deeply distressing, and I feel obligated to warn other patients especially those with severe autonomic disorders.

I have lived with a rare, degenerative autonomic neurological disease since 1986. I suffered cardiac arrest during a tilt-table test, have severe noradrenaline deficiency, and rely on medications like Droxidopa, which UCLH has in stock but has repeatedly refused to prescribe, despite it being the only effective treatment for my condition. Instead, I have had to import my own medication for decades.

Under Prof. Christopher Mathias, my diagnosis was mishandled. When errors became apparent, the response I experienced was not transparency but avoidance and obstruction. After this, I found myself unable to access other specialists, repeatedly redirected to doctors I did not choose, including Dr Iodice, and prevented from seeing anyone outside the same group. Referrals were blocked, rerouted, or rejected without explanation. Over time, this created the clear impression of a coordinated effort to control my case, leaving me with no freedom to seek appropriate care.

The issues with my medical records have been even more alarming. Essential test results have been missing, altered, or unreadable. Recent MRI images were provided as cropped, low-quality screenshots rather than proper films or full scans. Some documents I know existed have disappeared entirely. In two cases, I received images marked “Taken From Disk,” raising serious concerns about how my files were handled and why the original scans were withheld. This pattern has continued for years.

Because of these repeated actions denied treatment, blocked referrals, missing files, altered documents, and lack of transparency I have come to believe there is a pattern of obstruction centred around the past involvement of Prof. Mathias and those connected to him. From my side as a patient, it feels like a long-standing conspiracy to prevent any external specialist from reviewing the mistakes that were made.

Even when I escalated these issues, including serious data concerns and failures in care, the Ombudsman did not address the misconduct I raised. This left me without answers, without treatment, and without accountability.

My condition has worsened needlessly because access to essential treatment and honest medical documentation has been repeatedly delayed or denied. What I have experienced at UCLH has caused profound harm, both medically and psychologically.

Staff don't know how to relate to autistic patients. I've been reduced to tears by one member of staff who shouted over me and wouldn't listen to me at all. I've been patronised by other staff and when I asked for support from pals and complaints I've just been ignored completely. I've now complained to NHS England.

Dr Umesh Vivekananda details

Telephone:
020 3448 8625
Location:
National Hospital for Neurology and Neurosurgery
GMC/GDC number:
6159473

His secretary Gaby she and Umesh don’t bother getting in touch for appointment or phone call because I am having more seizures and some days my focal seizures happening 2 days all day and also giving me headaches after the turn sometimes and my mum can’t stand me and my carers from Extramile healthcare don’t always know when to give me diazepam and 1 or 2 extra Clobazam so I got no support . I can’t get hold of main one Arminder because she doing other shifts or busy with her children so not got support .
Uclh hospital know I had 2 operations in Montreal 12 hours long 1989
and 1990 and had fluid removed from
Brain and had some right temporal lobe and frontal lobe and hippocampus removed and a dr from
Uclh in 2024 said I have no right temporal lobe at all now because it shrunk so memory and everything transferred to left side of the brain . So got no epilepsy support now at all
Montreal said the stitching and scaring on brain leave me with depression and anxiety which I have and can’t cure tried all the antidepressants can take with epilepsy medication I am limited with .
So epilepsy focal seizures keep happening and have strange epilepsy feeling that continues all day sometimes

University College London Hospitals National Hospital for Neurology and Neurosurgery.

Lost referrals (referral lost in February finally got an appointment in September for next year - i.e. March 2026.), long waits (well over a year) and when one does get an appointment they try and fob-off with a telephone appointment in spite of previous triage. Disgraceful, disorganised and unsatisfactory. Avoid.

Visited today with my Mum and every staff member I came accross was absolutely lovely. Very caring and really warm and friendly. Totally different to my local hospital that make you feel like they don't have time for you.

The signage was very clear and concise so it was easy to find our way and if I looked unsure staff were actually asking me if I was OK and knew where I was going.

Everywhere looks clean too which for an OCD person to say, is a big compliment.

Special thanks to 1st floor surgery reception team, surgery and recovery teams. They carried out their jobs with such care above and beyond what we have been used to and put back some faith in the NHS.

All the staff made me feel so much more at ease and confident they would take good care of my Mum

Amazing service Thank you. Keep up the good work.

Update still waiting forcan apointment told it will be soon
Probably be dead before being seen

Was referred back to uclh by my gp july 2024 and now its almost July 2025 and the clinic say they run a 6 week apointment diary its my calculation it will be 52 weeks next week

I just want to say a heartfelt Thank you To Mr Mohammed Shaeir and The Staff of The Orthopaedic Department for your professional and efficient service

I had a botched operation in the vascular department at UCLH. I only met the consultant 2 minutes beforehand. She operated with local anaesthetic but did not bother to wait for it to work - so operated before the leg was numb; it was extremely painful. It also did not solve the problem so was not a success. I asked for a scan after the operation. She refused. UCLH vascular department refused. I had no proper care although she would do another operation. That's without having a scan to see if I needed one or it would work? Amazing how psychic these medics are, hey! I put in a formal complaint. I was told that my initial operation was a success!! Of course this rather begs the question - if it was a success why was another operation scheduled? And why was no scan ordered to verify its success? If I could name the consultant here I would - to warn people, never, ever go to her. Instead all I can say is, avoid UCLH vascular department at all costs. They don't care about you and like most government organisations just cover up for their employees. Meanwhile the pain continues. Not that anyone cares.

Where to start ..
Firstly they perforated my mother's Brachial Artery whilst attempting to fit a PICC line...
She now has permanent pain and reduced mobility in the affected arm...
Another occasion when admitted with an infected leg ulcer, left a 93 year old lady withe a history of COPD in a ward with known covid....My mother ended up with covid pneumonia and spent five days in critical care where she almost died....
They also made her leg ulcer far worse and I had to transfer her to a private hospital...
They lost ALL her clothes including trainers and underwear....
My late father was admitted after a fall, trapping his leg for two hours....He developed a bloodclot in the affected leg and was refused treatment because of his age and left battling gangrene and sepsis five months as he was written off....He was left in bed watching his foot die rather than surgery to remove the clot.... Whatever the risk of surgery, he had nothing to lose as he was a 100% dead man left as is....Upon his admission, he could still walk, use a bedpan and bottle....As a life lifesaving measure, had him transferred to the nearby private Wellington Hospital, but by then, he was twisted, bedridden and double incontinent...
It was also too late to save his leg and amputation was his only option, but because we were self funding and being chay£2600 per day at the Wellington Hospital, things got delayed and it became too late for my poor father who spent the last five months of his life in bed battling sepsis waiting to die as the UCLH wrote off a man who up to the time of his fall, washed himself every day at the sink, make himself breakfast, lunch, go shopping at Waitrose and make a five mile journey weekly, all done without help... My father's only crime was to have lived too long and therefore, in the UCLH's eyes, not worth their time and investment, so left him to die horribly.....At the end, he looked like he'd been in a Concentration Camp....If he had HRH in front of his name, he'd have been taken straight to theatre for lifesaving surgery....This was ageist medicine at its very worst....I am posting this review after the catalogue of negligence this awful hospital inflicted on my mother and late father...I am pursuing the UCLH through legal channels as the normal complaints procedures (GMC and PHSO) are a total waste of time as the medical profession is largely a closed shop...
UPDATE!!
My Mother died in this wretched Hospital on the 27th Jan ... Bad enough losing my dear Mother, but this excuse for a Hospital lost my Mum's very old and valuable wedding ring and her eternity ring.....The wedding ring is over 100 years old and was given to her by her Mother, so has great sentimental value.....The Hospital maintains Mum was not admitted wearing any rings, but I know for a fact she never removed them and wore them religiously for 76 years .....I have my suspicions as to what happened to the rings and reported it to the Police....They lost all my Mother's clothes several years ago, but clothes can be replaced, the rings cannot, so I am now dealing with a double loss......I can't put into words the contempt I have for this Hospital